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Rare and Relentless
Galactosemia Reimagined
Ultra Blog
Donations to Keep this going!
Rare and Relentless
Galactosemia Reimagined
Ultra Blog
Donations to Keep this going!
Galactosemia Reimagined
Ultra Blog
Donations to Keep this going!
Gillian Hall Sapia 12/31/25 Gillian Hall Sapia 12/31/25

FDA Rare Disease Laws conclusion:

Rare Disease Lottery…. you are not the only one.

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Gillian Hall Sapia 9/16/25 Gillian Hall Sapia 9/16/25

They Did It — Babies Across the World Win

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Gillian Hall Sapia 9/13/25 Gillian Hall Sapia 9/13/25

Collaboration Delayed-Is Treatment Denied

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Gillian Hall Sapia 5/30/25 Gillian Hall Sapia 5/30/25

When the Feds Step Back, the States Must Step Up: Why I Drafted a State Bill for Galactosemia

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Gillian Hall Sapia 5/20/25 Gillian Hall Sapia 5/20/25

Stay Small in Mission, Even as You Grow Big

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Gillian Hall Sapia 4/1/25 Gillian Hall Sapia 4/1/25

The $2.5 Trillion Math Problem That Rare Disease Families Can’t Afford to Ignore

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